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date: 09 August 2020

Abstract and Keywords

Many new parents have little awareness of the battery of screening tests that are routinely conducted on newborns in the United States and the developed world. Newborn screening, one of the most significant achievements in public health over the past 50 years, invites ongoing debate over a number of ethical and legal issues that have been part of the newborn screening landscape since the inception of the programs in the 1960s. This chapter reviews the history of newborn screening, outlines some of the key ethical and legal issues raised by these programs, and offers a prediction about how new technology may change these systems over the next few decades.

Keywords: newborn screening, parental permission, population screening, American Academy of Pediatrics, PKU, sickle cell disease, hemoglobinopathies, hypothyroidism, galactosemia, Fragile X

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