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date: 25 November 2020

Abstract and Keywords

This chapter examines some important developments relating to U.S. health information law over the past decade. It first explores issues of patient privacy arising from the use of digital records, with particular emphasis on the “rapid-learning health system.” It then evaluates the promise and limits of rankings and ratings used in helping patients, payors, and policy-makers choose among providers, pharmaceuticals, devices, and other interventions. It also considers the dissemination of electronic health records from which a “learning health system” designed to secure protected health information could be drawn, along with the importance of data protection and accessibility to medical research and breakthroughs. It argues that approaches such as data collection and use at each stage of the healthcare delivery process are necessary to achieve the triple aim of individual quality enhancement, population health improvement, and cost control.

Keywords: health information law, patient privacy, digital records, rankings, electronic health records, learning health system, health information, data protection, medical research, data collection

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