- Copyright Page
- About the Editors
- About the Contributors
- Toward a Sociology of the Body
- Methodologies for Categories in Motion
- Pregnant Embodiment and Field Research
- Sensory Experience AS Method
- Mixed Methods in Body and Embodiment Research
- YouTube Vlogs as Illness Narratives: Methodological Consideration
- Representations of Fatness by Experts and the Media and How This Shapes Attitudes
- Health at Every Size (HAES<sup>™</sup>) as a Reform (Social) Movement within Public Health: A Situational Analysis
- Fat as a Floating Signifier: Race, Weight, and Femininity in the National Imaginary
- Animal, Mechanical, and Me: Organ Transplantation and the Ambiguity of Embodiment
- Aging, Gender, and the Body
- Beyond Binary Sex and Gender Ideology
- Male Breast Cancer in the Public Imagination
- Good-Looking Men Require Hard-Working Women: The Labor of Consumption in the Grooming Industry
- Feeding and Fasting Bodies
- Contrasting Scientific Discourses of Skin Lightening in Domestic and Global Contexts
- Unruly Bodies: Figurative Violence and the State’s Responses to the Black Panther Party
- Race, Phenotype, and Nationality in Brazil and the United States
- The Aesthetic Labor of Ethnographers
- Bodies That Don’t Matter, but Labor That Does: The Low-Wage Male Migrant in Singapore and Dubai
- Embodied Spatial Practices and the Power to Care
- Contesting New Markets for Bodily Knowledge: When and How Experts Draw the Line
- Managing Risky Bodies: From Pregnancy to Vaccination
- The Artificial Pancreas in Cyborg Bodies
- Contesting Lyme Disease
- “Laying Hands” and Learning to Touch and Grab in the Police Academy
- The Place of the Body in Resistance to Intimate Partner Violence: What Do We Know?
Abstract and Keywords
Using the case of direct-to-consumer genetic testing, this chapter examines how experts contested the emergence of this new market for bodily knowledge in the United States at the beginning of the twenty-first century. Drawing on theoretical innovations in economic sociology and medical sociology, the author analyzes how scientists, clinicians, and genetic counselors made the argument that genetic information should be provided within the context of a clinical relationship and not a commercial relationship. A systematic examination of editorials in scientific and medical journals, statements by medical professional organizations, and interviews with genetic counselors reveals that experts draw a bright line between medical genetic testing and commercial genetic testing by emphasizing the complexity of the information and the different motivations of clinical versus corporate purveyors. The conclusion offers suggestions for how to study markets for bodily knowledge, and it discusses how experts’ claims may affect people’s ability to access and control their own bodily information.
Rene Almeling is a sociologist at Yale University with research and teaching interests in gender and medicine. She is the author of Sex Cells, an award-winning book that offers an inside look at the American market for egg donors and sperm donors. Her second book, GUYnecology: The Missing Science of Men’s Reproductive Health, is being published in 2020 by University of California Press. Her articles have appeared in American Sociological Review, Annual Review of Sociology, Journal of Health and Social Behavior, and Gender & Society. She is a recipient of the Arthur Greer Memorial Prize for Outstanding Scholarly Research, one of Yale’s highest honors, and holds courtesy appointments in American Studies, the Yale School of Public Health (Health Policy), and the Yale School of Medicine (History of Medicine).
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