- In Pursuit of Justice for Disability: Model Neutrality Revisited
- Theoretical Strategies to Define Disability
- Disability, Health, and Difference
- Habilitative Health and Disability
- Philosophy and the Apparatus of Disability
- Disability Liberation Theology
- Disabilities and Well-Being: The Bad and the Neutral
- Causing Disability, Causing Non-Disability: What’s the Moral Difference?
- Why Inflicting Disability is Wrong: The Mere-Difference View and the Causation-Based Objection
- Evaluative Diversity and the (Ir)Relevance of Well-Being
- Contractualism, Disability, and Inclusion
- Civic Republican Disability Justice
- Disability and Disadvantage in the Capabilities Approach
- Disability and Partial Compliance Theory
- Fair Difference of Opportunity
- The Disability Case Against Assisted Dying
- Epistemic Exclusion, Injustice, and Disability
- What’s Wrong with “You Say You’re Happy, but … ” Reasoning?
- Interactions with Delusional Others: Reflections on Epistemic Failures and Virtues
- Disability, Rationality, and Justice: Disambiguating Adaptive Preferences
- Ideals of Appreciation and Expressions of Respect
- The Limiting Role of Respect
- Respect, Identification, and Profound Cognitive Impairment
- Care and Disability: Friends or Foes
- A Dignitarian Approach to Disability: From Moral Status to Social Status
- Cognitive Disability and Moral Status
- Dignity, Respect, and Cognitive Disability
- On Moral Status and Intellectual Disability: Challenging and Expanding the Debates
- Neurodiversity, Autism, and Psychiatric Disability: The Harmful Dysfunction Perspective
- Educational Justice for Students with Intellectual Disabilities
- A Symmetrical View of Disability and Enhancement
- Cognitive Disability and Embodied, Extended Minds
- The Visible and the Invisible: Disability, Assistive Technology, and Stigma
- Neurotechnologies and Justice by, with, and for Disabled People
- Second Thoughts on Enhancement and Disability
- Cost-Effectiveness Analysis and Disability Discrimination
- Prioritization and Parity: Which Disabled Newborn Infants Should Be Candidates for Scarce Life-Saving Treatment?
- Why People with Cognitive Disabilities Are Justified in Feeling Disquieted by Prenatal Testing and Selective Termination
- Reproductive Choice in Context: Avoiding Excess and Deficiency?
- Bioethics, Disability, and Selective Reproductive Technology: Taking Intersectionality Seriously
- Procreation and Intellectual Disability: A Kantian Approach
- Parental Autonomy, Children with Disabilities, and Horizontal Identities
- Beyond Instrumental Value: Respecting The Will of Others and Deciding On Their Behalf
Abstract and Keywords
The interplay between assistive technology and disability has received scant attention within disability studies, in part because of the assumption that any consideration of prosthetic technology must represent support of the medical model of disability. In this chapter, the authors challenge that assumption by demonstrating that an understanding of the lived experience of prosthetic use or nonuse can reveal crucial social influences that affect modification or rejection of prescribed technology. Invisible disabilities that are revealed primarily through the addition of body technology provide poignant examples of the crucial role of stigma in the decision to reject or modify technology to “pass” as “normal.” This chapter explores historical failures of assistive technology as failures to understand the subjective experiences of the disabled. By prioritizing a phenomenological understanding of nonuse, the authors explain the lack of fit between prosthetic designs and user experiences and advocate greater user involvement in healthcare design.
Dr Coreen McGuire is a Postdoctoral Research Fellow on ‘The Life of Breath Project’ at the University of Bristol. Her research focuses on the historical use of spirometry technology in scaling and defining levels of respiratory disability. The role of measurement and standardisation in creating categories of disability was a key component of her PhD research on telephony and hearing loss.
Havi Carel is Professor of Philosophy at the University of Bristol. She is a Wellcome Trust Senior Investigator, leading the Life of Breath project (2014-2020; www.lifeofbreath.org). She is the author of Phenomenology of Illness (2016), Illness (2008, 2013, 2018 shortlisted for the Wellcome Trust Book Prize), and of Life and Death in Freud and Heidegger (2006). She was voted by students as a 'Best of Bristol' lecturer in 2016. She previously held grants from the AHRC, British Academy and Leverhulme Trust (http://www.bristol.ac.uk/school-of-arts/people/havi-h-carel/index.html).
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